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The risk management framework used in Alberta

January 22, 2017

Reading Children’s Books
I took my Power in my Hand – / And went against the World – Emily Dickinson (Poem 660)

Thursday, September 8, 2016
—–the risk management framework used in Alberta / is all about silencing citizens——————what happens if we all say no / to premature termination?
we say our true thoughts
to the society
these are our disabled family members
and not throwaway citizens
we’re not going to stay silent
when premature termination
is used as a control mechanism
for ensuring costs are contained
by a health care system
that can’t find it’s head or its hands
we’re reporting abuse and deaths
so that families will be educated
in failures in the system
we understand these failures
are to be tolerated by us all
because we can’t do a class action lawsuit
to show government it’s responsibilities and liabilities
the risk management framework used in Alberta
is all about silencing citizens

we say our true thoughts
to the society
so that when you use the health care
or the continuing care system
you will be aware of this risk management framework
that publicizes success success success
but in the interests of privacy
shuts down the conversation around abuse and death
in continuing care
because each family is a discrete powerless entity
this junk has been going on for decades in Alberta
but what happens if
each family publishes its own horror story?
what happens if we join up and make a new story
of unified resistance?
what happens if we all say no
to premature termination?
what happens then?
I’m guessing things will change in Alberta

– Julie Ali

VIDEO: The Disability Community Responds to Me Before You movie
June 28, 2016Carrie Ann Lucas, disability activists, Disability and Representation, disability rights advocates, Me Before You, media, Our News & Commentary Blogassisted suicide, Carrie Ann Lucas, disability activists, Johnny Crescendo, Me Before You, mediaStephen Drake

There’s a brand new video created by Carrie Ann Lucas celebrating protests of the movie “Me Before You” by the disability community on three continents. Carrie is on the Board of Directors of NDY and one of the leaders of Colorado NDY. Here’s how she describes the video:
The disability community responded to the disability snuff movie, Me Before You, with protests in many countries on three continents. The movie gives audiences the message that if you’re a disabled person, you’re better off dead #LiveBoldly? We already do! #MeBeforeEuthanasia
The musical backdrop for the video is by activist/songwriter/musician/singer Johnny Crescendo, singing “Not Dead Yet,” a song he wrote years ago about our community’s opposition to assisted suicide and euthanasia. The video is captioned – and here’s info on how to access audio description:
Video described version available at at
Caution: This video includes rapidly moving images which may induce seizures or other neurological responses in sensitive individuals.


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